Navigating Angelman Syndrome with Amanda Moore

What happens when life takes an unexpected turn? In this heartfelt episode of Moms Like Me, host Jordan Arogeti sits down with Amanda Moore, CEO of the Angelman Syndrome Foundation, to share her incredible journey of adoption, advocacy, and resilience.

Amanda opens up about her son Jackson’s diagnosis with Angelman syndrome, the challenges of raising a child with a rare disease, and how her family found strength, support, and hope. She discusses the critical need for early diagnosis, the power of community, and the life-changing impact of perseverance.

📌 Topics Covered:
✔️ Early signs and diagnosis of Angelman syndrome
✔️ Navigating the medical system and advocating for genetic testing
✔️ Finding hope and support in the rare disease community
✔️ Celebrating milestones, big and small
✔️ How to support families raising children with special needs

Whether you’re a parent, caregiver, or someone who wants to better understand the world of rare diseases, this episode is filled with inspiration and practical insights.

🔗 Learn more about Angelman syndrome: angelman.org
💙 Support families in need: supportnow.org

🎧 Listen now and be inspired by Amanda’s unwavering love and determination. Don’t forget to like, comment, and subscribe for more empowering conversations! #AngelmanSyndrome #RareDisease #MomsLikeMe #Parenting